It all started when I lost sight – only in one eye It lasted a day, but no one knew why Then over time my foot – well it would just flop, And then there was the peeing!! when would it all stop? You would get that feeling like you really needed to go- No time to get to a toilet…….. OH NO! OH NO! It was embarrassing, I tried to hide From my friends and family – I am going out of my mind.   Over time the flopping spread up to my leg I knew there was something wrong  going on in my head. I...

In this month's spotlight, we chat with Clark about how his favourite hobbies help him navigate life with myotonic dystrophy.   For Clark, one of our valued community members, staying connected to his passions has been a vital part of his journey. While living with myotonic dystrophy brings its own set of challenges, such as muscle weakness and myotonia, which can make simple tasks like releasing a door knob difficult, Clark has found that his interests provide both a sense of purpose and a...

After my weeks sailing in Sardinia with Oceans of Hope earlier this year, I decided to sign up for the Oceans of Hope, Lake District outdoor activities weekend in August.   Calvert Trust was founded in 1976, the inspiration of John Fryer-Spedding, whose vision was to enable people with disabilities to benefit from outdoor activities in the countryside.  https://calvertlakes.org.uk   Today Calvert Lakes provides adventure breaks and holidays for people with disabilities. A not-for-profit...