My Journey

It all started when I lost sight – only in one eye

It lasted a day, but no one knew why

Then over time my foot – well it would just flop,

And then there was the peeing!! when would it all stop?

You would get that feeling like you really needed to go-

No time to get to a toilet…….. OH NO! OH NO!

It was embarrassing, I tried to hide

From my friends and family – I am going out of my mind.

Over time the flopping spread up to my leg

I knew there was something wrong  going on in my head.

I shouted, lashed out and looked for someone to blame

I think I knew deep down that my life would never be the same

This isn’t fair, I am young, so go away!

Whatever this is, I don’t want to play

I had the scans and you know,  the various tests

And then they confirmed it – I had MS

Two letters that would completely change my life

Two letters which cause me a lot of pain and financial strife

I was scared, things were moving way too fast

The big black cloud rolled in, its shadow it cast

I didn’t want anyone outside my family to know

I hid in the house, my mood became very low

With help, one day, the clouds, they started to clear

I began to accept that what I had felt had been fear

Fear of the unknown and what would happen now

The fear? Yes it is still there but seems lesser somehow.

The first step, as it is in every case

Is the hardest for anyone as we begin to face

Not the end of the road, but the start of a  new path

To meeting new people and having a laugh

To be encouraged to try out things that to me are new,

Massages, painting and writing to name but a few

Thank you for being on my journey and allowing me to share

And to the staff here and the therapists who show that they care

This path I call Tuesday, and for me, is almost at an end

But I hope that we will all meet up sometime in the future to have a laugh again.

Written by Nicola Fry for her husband Tim Fry, who died suddenly in 2021 aged 51.

Reproduced here by kind permission of the author. Copywright 2017.