In this month's spotlight, we chat with Clark about how his favourite hobbies help him navigate life with myotonic dystrophy.   For Clark, one of our valued community members, staying connected to his passions has been a vital part of his journey. While living with myotonic dystrophy brings its own set of challenges, such as muscle weakness and myotonia, which can make simple tasks like releasing a door knob difficult, Clark has found that his interests provide both a sense of purpose and a...

After my weeks sailing in Sardinia with Oceans of Hope earlier this year, I decided to sign up for the Oceans of Hope, Lake District outdoor activities weekend in August.   Calvert Trust was founded in 1976, the inspiration of John Fryer-Spedding, whose vision was to enable people with disabilities to benefit from outdoor activities in the countryside.  https://calvertlakes.org.uk   Today Calvert Lakes provides adventure breaks and holidays for people with disabilities. A not-for-profit...

In December 2024 I was fortunate enough to be accepted and offered a place on the Oceans of Hope Sardinia Sailing Challenge scheduled late April / early May of 2025.   Oceans of Hope are an independent UK registered charity which aims to offer people from all over the world the opportunity to experience sailing as a way of learning new skills and restoring the self-confidence which can be stolen by MS.  It’s for people with MS, led by people with MS who are uniquely placed to understand the...